Happy 4th birthday to Piper. If I had to use one word to describe you, it’s “light.” Your bright light shines wherever you go. You are my sunshine, and my greatest teacher. I love you!
One of the most disheartening things about “growing up” is the learned ability to see things for what they really are. It’s a gradual process. Somewhere, in time, the pretty pictures we painted in our minds as children fade away and are replaced with reality. The pictures which reality paints aren’t easy on the eyes and are even harder on the mind. Reality’s pictures make us introspective; they make us question parts of our lives that we hadn’t considered as children.
Reality, being the bitch that she is, asks questions that demand answers. The journey of finding those answers strips us bare. It is in the adult journey to discovery that the heroes of our childhood are forced off of their pedestals and exposed for what they are- humans with real flaws.
Sometimes, reality is just plain cruel. Sometimes it forces you to draw up an entirely new picture of your family in order to find yourself. This is my current position in the good old “Game of Life,” and it is here that I find myself in the throes of a love-hate relationship with adulthood and reality, simultaneously.
My life, as a whole, is in a state of perpetual change. I don’t think my feet have been on solid ground since my youngest daughter was diagnosed with autism a little under a year ago. I’ve come to embrace this new, unsteady terrain, and the challenges that come along with it. I’ll even reach far enough to claim that this very lack of stability has granted me the clarity to prioritize my life.
For nearly a year, I stretched myself as far as I could go to meet the demands of my daughter’s treatment while working full time. I truly believed that I had everything under control. I’m not sure at what moment it happened, but I found enough clarity to learn a couple of very important lessons. First- I am not Gumby- I can only stretch so far without causing permanent damage. In an effort to meet life’s demands, I had stretched myself to the point that I was becoming invisible. I was so exhausted, I had become a shadow of my former being. Second- I was far from having everything that was important covered. My efforts to be everything to everyone had left me exhausted and, over time, had robbed me of my spirit. Consequently, I had begun to rob my husband and children of the wife and mother they needed, too.
In that moment of realization, I recognized that I couldn’t sustain a lifestyle that came at such a great cost. My husband and children weren’t getting the best of me. I hadn’t seen my own parents in a year. My father has battled and beaten cancer twice in my adult life, experiences from which I’ve learned that life can be fleeting. My children needed to see their grandparents to truly know them, and I felt that I needed to be surrounded by my family to feel whole again. My husband gave me his blessing to resign from the job I loved- a gift that gave me back time to be truly present for our family. The first thing I did was plan a long-overdue trip home. Unbeknownst to me, reality had planned a visit of her own.
Even as an adult, I haven’t outgrown my desire to make my parents proud. As we buckled our children into the minivan at 5AM, I felt like Dave and I had so much to be proud of! I was excited beyond measure to share Piper’s progress with my mom and dad. I couldn’t wait until they saw that Cameron had learned to read this past year in Kindergarten, or for them to be blown away by what an insightful young lady Kaydence has become at age nine. The closer we got, the more excited I became. I just knew they’d be proud!
I don’t know what I expected, but what I do know in hindsight is that, deep inside, I hadn’t outgrown the need for my parents’ affirmation, either. Reality knew, though. I wish she would have warned me and spared me the heartbreak of feeling completely deflated.
Fair or not, we all hold people to certain standards. After spending a week back at home, one which I had built up so much in my mind beforehand, I can say with brutal honesty that I didn’t feel like I measured up to the standards my mom and dad set for me.
I grew up with “superwoman” for a mother. That’s the picture I painted, with help from everyone around as they always marveled at her ability to do it all. To her credit- she put more effort into meeting our physical needs and making sure our bellies were full of delicious home-cooked meals than anyone I’ve ever met. She also managed to do an incredible amount of work around the house to keep an impeccable home, despite having four children. Perhaps by these standards, I have failed her. I could feel her displeasure with me as I relied heavily on my husband to assist me in completing the very tasks that she did perfectly by herself as a young mother. “He’s doing too much,” she told me. I know she that meant that he should be resting more after having back surgery in April, but still, those words stung. “You’re not enough,” is what echoed in my mind every time he helped me from that point forward.
I still can’t figure out where I have come up short in my father’s eyes. He didn’t articulate it, but I felt it. He was my “coach” and my biggest fan. He made a spiral- bound book of my athletic achievements that, if you don’t know better, reads like I was an Olympian! He taught in a different school district than I attended, yet somehow never missed a single high school softball game. He challenged me, sure, but he cheered the loudest. When did his voice fall silent? Is it that his own challenges have exhausted him, or have I let him down somehow? The pretty picture I painted doesn’t match reality, and this leaves me confused and sad. Do I no longer offer anything worth celebrating?
I said before that reality demands answers, and it is those answers that help us find ourselves. I’ve had a few days to sort through my emotions, and I think I’ve found the most important answer.
All I can be is just me.
My mother is a wonder of her own right- the most capable woman I’ll ever meet. When I said she did it all-I was being literal. I never did a single load of laundry, ironed clothes, or vacuumed while I lived under her roof. In her eyes, no one could do it like she could. She recognized that, and did all of it herself. As a result of her hard work, I was ill-prepared to do those things. Held to her high standards of keeping house, I will never, ever measure up. The thing is- this doesn’t make me a failure as a mother!
Though I so badly miss my dad voice his pride, perhaps I need to stop looking for it. His pride carried me through my childhood years. Maybe I reveled in it for too long. It could be that I became so dependent on his praise that I question myself in its absence. Perhaps he’s not belong aloof. He could just be enjoying the view from further back in the audience. The absence of affirmation, while it confuses me, doesn’t define me as a failure.
To the contrary, I think I’m doing okay as a mother. This is not in spite of my own parents. Their example shaped me as I was a child drawing pretty pictures, and continues to shape me as reality teaches me about imperfection and grace.
What I am is the mom who gets down and dirty. I may not be in a hurry to clean it up, but I enjoy the heck out of making a mess with my children. I am the mom who takes shortcuts, but not because I’m lazy. I take them in order to be present.
We got home at 5PM, yesterday, after ten hours in the car. My mom would have unpacked everything, put the suitcases away, and whipped up a meal without ever stopping to rest. I did none of that. I ran to the store and grabbed a handful of Lunchables. I put my kids back in the car, and my husband and I took them to the pool before it closed for the night. They didn’t even eat until 8PM, as we were on our way to celebrate National Ice Cream Day. The bags remain unpacked. My kids were filthy, exhausted, and happy. I am not the mother that my mother was. I never will be. All I can be, is just me.
The truth is, I can’t expect my parents to understand the challenges I face as a mother. I can’t expect them to know, without being told, that there is no day-by-day in the life of our little family. We live from one situation to the next, and are often overwhelmed, but we’re learning. Traveling with a child on the spectrum is overwhelming because change is their kryptonite. While I have much to be proud of, I was often tense and tired during our visit. My parents certainly didn’t witness my finest performance as a parent. They did get to spend quality time with their grandchildren, the stars of the show. I can tell you this-their grandchildren painted some beautiful pictures in their minds of those memories.
Listen up, and please listen carefully. I have something important to say.
Or, don’t listen. Don’t read any further, if you don’t want to. Maybe you don’t care what I have to say, and that’s okay, too.
I’m speaking to all of you, though.
I’m speaking to all parents to children with autism who have chosen to share your journeys. I’m reaching out to all of you, who, after the day has long since taken every drop of energy in your reserve, dig even deeper to live the day all over again just to let someone else know they’re not alone. What a profound, selfless gesture it is to do so! Your unabashed honesty brings clarity to so many, yet you face scrutiny from other parents for not being “real” enough. I know this, because I’ve been there, repeatedly.
“Too cute and sugar-coated” was one bit of feedback I received on a recent piece. “… don’t downplay its seriousness with hearts and rainbows” was another.
I accept that what I write will not resonate with everyone, but this was just disheartening. With that in mind, I’m going to offer an explanation in regards to the manner in which I choose to convey the messages I share. In doing so, I’m speaking directly to those of you who have chosen to pass judgement.
Just as my child on the spectrum does not fit into a particular mold, neither do I! There is no “one size fits all” manual for maneuvering through a life that includes autism. Therefore, there should be no expectation amongst parents in the same community in regards to what is deemed a realistic or reasonable outlook for a child’s future!
My daughter and I have a lot of days that are less than stellar. On these days, I have moments where I cry, alone, because I feel completely inadequate. However, hidden between those tumultuous moments have been some real moments of pride, inner strength, and pure joy. I write about these days, these experiences, as a whole. I don’t omit reality and write fairy-tales as many have claimed. I do deliberately choose to focus on how these experiences have made me stronger and more capable. If that’s not your cup of tea, I accept that. What I do not accept is the notion that I’m misguided, because the tone of my writing is too positive.
I have three children. Someday, they will undoubtedly plug their names, or mine, into a search engine. I want the results of that search to show them how much this experience has taught me as their mother.
The writing I choose to share is not “too” anything. It is my own. Writing is therapeutic. Just as it can cleanse the soul to vent about a terrible experience, it can build confidence to write a positive message. I share my journey because I believe the lessons I learn may motivate others to push through. There’s nothing sugar-coated about it. My daughter inspires me, and I’m excited to watch her grow.
It’s not unheard of for my oldest daughter to worry. It’s actually quite the norm. She is nine years old and incredibly bright and insightful. These qualities seem to come with a certain degree of personal cost, though. She’s easily overwhelmed and worried by things that wouldn’t even register as a blip on the radar for a typical pre-teen. I’ve spent many nights trying my best to calm her fears as she’s sat in bed, worrying about things like the Ebola outbreak and acts of mass violence in school. So, the other day, when I sensed her anxiety and asked her to tell me what was on her mind, I wasn’t expecting her answer to be so deeply personal.
“Mommy, I read in a book that there is no cure for Autism. That makes me really sad for Piper.”
For a moment, I was at a complete loss for words. My silence seemed to deepen her sense of worry, and she followed up with “Is that true, Mom? Is she going to be okay?”
Before I could find the right words, my husband carefully explained to her that autism is not a disease, and should not be viewed as such. More importantly, he assured her that Piper is, and will continue to be just fine. This seemed to satisfy her for a moment, but the proverbial wheels were turning. A few minutes later, she pressed us further.
“If it’s not a disease, then what is it?”
By now, I’d recovered enough from my thoughts to add to the conversation. “People who have autism don’t need to be cured, Kaydie, because there is nothing “wrong” with them,” I offered. “They just experience and process things differently. Instead of searching for a cure, or a fix for something that isn’t broken, there needs to be a greater effort to understand how people like Piper see the world. Then, we can learn to relate and communicate in a way that everyone understands.” I went on to explain that Piper spends so much time in therapy not in an effort to be cured, but rather, because she was having difficulty showing and telling us how she was feeling. I did my best to explain that helping Piper express her thoughts and feelings is an important part of understanding Autism, as a whole.
I hoped, in that moment, that this was enough of a learning experience to ease her anxiety over her sister’s future. It seemed to be. She went back to watching the movie she’d been watching with her siblings, seemingly satisfied with the conversation.
I was the one who was left exhausted and saddened by this brief exchange. Even though campaigns for autism awareness are everywhere, this conversation left me feeling like we’re fighting an uphill battle. Where, as human beings, are we getting this so wrong? My nine-year-old is a very literal thinker, and therefore asks questions about things that don’t make sense to her. How many other nine-year-olds are reading the same literature she read? How many of them stumble upon misinformation like this, take it at face value, and view autism as some kind of incurable disease? If anything scares me about Piper’s future, it is this type of mentality.
Perhaps some of the efforts to raise awareness are misguided. Is it possible that we are focusing so much on educating this generation of parents that we are forgetting that our childrens’ generation needs educating, too? As parents of children with autism, we are a community with a voice that is getting collectively louder and in doing so, gaining much needed attention. How, though, can we expect our children to be the next generation of advocates if we are not enabling them to understand, as well?
If there is one thing I wish people would stop getting so wrong about autism, it is the notion that those who have it are “suffering” or somehow broken. I truly believe that it’s time we re-direct our call for awareness to include our young children. Equally if not more important, we must reach their classmates with no firsthand exposure to autism. If there is a lesson to be learned, here, it is this- It will be far easier to plan carefully and to lay a foundation which educates children correctly from the beginning than it will be to try to change their mindset later in life. We’re currently fighting our hardest to break through the barrier of preconceived notions about autism. If we don’t give our children a better starting point, we will never progress past this point, ourselves. We will merely pass along to them the same obstacles we are fighting so hard to overcome, today.